Selected Publications

Long, C. O., & Hector, P. (2017). Palliative care in nursing homes. In P. J. Coyne, B. Bobb, & K. Plakovic (Eds.). Conversations in palliative care. Questions and answers with experts (4th ed.). (pp. 323-336). Pittsburgh, PA: Hospice and Palliative Nurses Association.

Long, C. O. (2017). Care of the dying and those who grieve. In E. Varcarolis (Ed.). Essentials of Psychiatric Mental Health Nursing (3rd ed.). Elsevier Evolve.

Long, C. O. (2016). The spiritual self: Pathways to inner strength for caregivers. Arizona Geriatrics Society Journal, 22(2), 14-18.

Interview of Dr. Long in… Neiman T., Kovach C.(2016). Research Needs and Challenges Regarding Palliation for Individuals in Long-Term Care Settings. Research in Gerontological Nursing.9(1) 2-5. doi: 10.3928/19404921-20151211-01

Long, C. O. (2016). Team communication in the nursing home setting. In E. Wittenberg-Lyles, B. Ferrell, J. Goldsmith, T. Smith, S. Ragan, M. Glajchen & G. Handro (Eds.). Textbook of Palliative Care Communication (pp. 346-354). New York: Oxford University Press.

Nakanishi, M., Miyamoto, Y., Long, C. O., & Arcand, M. (2015). The Japanese comfort care booklet about palliative care for advanced dementia in nursing homes. International Journal of Palliative Nursing, 21(8), 385-391.

Long, C. O. (2015, February 6). Transcultural Nursing Scholars’ Corner: Palliative care and transcultural nursing meet. Journal of Transcultural Nursing. Published online before print. DOI: 10.1177/1043659614557360

Fielding, F., & Long, C. O. (2014). The death rattle dilemma. Journal of Hospice and Palliative Nursing,16(8), 466-471.

Long, C. O., Brown, C., Murphy-Ende, K., Newton, S., Glennon, C., Hankle, K. S., & Lubejko, B (2014). Involvement of the Oncology Nursing Society (ONS) in palliative care and educational programs in the Middle East. In M. Silbermann (Ed.), Palliative care for the cancer patient: the Middle East as a model for emerging countries (pp. 245-255). Hauppauge, NY: Nova Publishers.

Long, C. O. (2013). Pain management in long term care: It can make a difference. Pain Management Nursing, 14(4), 220-227.

Long, C. O., Sowell, E. J., Hess, R. K., & Alonzo, T. R. (2012). Development of the Questionnaire on Palliative Care for Advanced Dementia (qPAD). American Journal of Alzheimer’s Disease and Other Dementias, 27(7), 537-543.

Long, C. O. (2012). Pain and Dementia. American Hospice Foundation.

Long, C. O., & Kelly, K. (2011). ELNEC: Providing opportunities to expand palliative and end-of-life care education in Arizona nursing homes. Arizona Geriatrics Society Journal, 16(1), 9-12.

Long, C. O. (2011). Cultural and spiritual considerations in palliative care. Journal of Pediatric Hematology/Oncology, 33(Supp.2), S96-101.

Long, C. O. (2011). Ten best practices to enhance culturally competent communication in palliative care. Journal of Pediatric Hematology/Oncology, 33(Supp. 2), S136-S139.

Long, C. O., Morgan, B. M., Alonzo, T. R., Mitchell, K. M., Bonnell, D. K., & Beardsley, M. E. (2010). Improving pain management in long-term care: The “Campaign Against Pain”. Journal of Hospice and Palliative Nursing, 12, 148-155.

Long, C. O. (2009). Palliative care for advanced dementia: Approaches that work. Journal of Gerontological Nursing, 35(11), 19-24.

Long, C. O. (2011). Palliative care in nursing homes. In J. T. Panke & P. J. Coyne (Ed.). Conversations in Palliative Care. 3rd ed. pp. (pp. 255-264). Pittsburgh, PA: Hospice and Palliative Nurses Association.

Long, C. O., & Morgan, B. (2008). Pain management. The resource guide for Home Health Care and Hospice Nurses.Baltimore, MD: Hopkins Educational Resources.

Long, C. O. (Ed.) (2006). Palliative Care for Advanced Dementia Guidelines and Standards. Phoenix, AZ: Alzheimer’s Association, Desert Southwest Chapter.


Contact Carol O. Long, PhD, RN, FPCN, FAAN

To contact Carol O. Long, PhD, RN, FPCN, FAAN about Palliative Care Essentials, send her a message or call 480.893.3685.